The Face that went Viral

All my life I’ve had to swim upstream against the world constantly telling that I am not beautiful enough. I’m not beautiful enough to walk into a restaurant without disgust-filled, wide-eyed stares. I’m not beautiful enough to walk into a store without degrading marks from strangers…Strangers who forget I have eyes that can see their never ending gaze, and ears that can hear their hurtful words.

People often forget that I’m more than a girl with a facial difference. They forget I’m more than just my face - I’m more than just a birthmark. They forget I’m more than something to stare at with their wide eyes and open jaws. People forget that I have a name.

My goal is not to indorse or promote this Facebook group,
hence blurring their name, link, and logo.  My only goal is to
tell my story and respond to the situation.

My name is Crystal. I love to travel the world, capturing beautiful moments with my camera, pen, and journal, in hand.  I'm a baker (creme brûlée will be my next challenge!), a Jamba Juice addict, and future American Sign Language Interpreter.

I'm someone who has experienced tremendous joys, but also gut-wrenching sorrows. I’ve swam with dolphins, adventurously lived overseas, but I have also experienced the loss of my baby niece and have watched my mother take care of my father in his poor health.  I am more than the mark on my skin.

There is so much more depth to who I am than the appearance of my face…But people forget that. It’s a rarity when I go a day out in public without one person who stares at me, one person who makes a rude remark…treating me as though I am only half a person because of half my face.

In the past I’ve been told by (adult) strangers that I must have skin cancer, that there is something wrong with me, and that it’s not really a birthmark. Strangers have persisted that I should have surgery to “fix” my face, even after I tried to educate them by explaining that it’s not that simple – and I’m happy with who I am, how I am. Others have told me that I must be courageous, for if they were me – they’d never even leave their house. Sometimes I can’t even drive my car across town without nosey eyes invading my personal space with their prolonged, demeaning stares.

Just like millions of other people, I have a birthmark. Mine just happens to be on my face.

The birthmark I have is called a Port Wine Stain. Three of every 1,000 people are born with this kind of birthmark and they are most commonly found on the face and neck.

Instead of being the typical skin-deep birthmark, mine goes all the way to my brain as it is caused by extra blood vessels. If people look in my ears, down my throat, and in my nose, there is an obvious color difference. (Not that I usually go around asking people to look up my nose. Apparently that’s socially unacceptable…Even in California.) My left upper lip is also affected in color, and in size, as well as my left cheek…Even my bone structure is different on the side with the birthmark! (But it’s kind of cool…It’s similar to a mood ring as it changes colors with the temperatures of the day. People always known I’m cold before I even say a word!)

Doctors warned my parents that I could possibly have seizures within the first 24 hours of my life. If I did, I’d have them for the rest of my life. I’ve been incredibly blessed that this has not been an effect of my birthmark and I’ve never experienced a seizure. However, my birthmark does effect my teeth, gums, and my eye.  I'm also still at risk of later developing epilepsy later in my life so my doctors and I closely monitor the blood vessels around my brain with an MRI ever few years.

Due to the extra blood vessels, I have extra blood pressure in my eye causing an 80-year-old disease called glaucoma. From the age of 8-years-old, I’ve had to live with and accept fact that my left eye could possibly go blind one day in my distant future…as well as administer eye drops to my eye twice a day. Every few years I also have to have MRIs to make sure that none of the extra blood vessels have expanded to cause any damage to my brain.

How I normally look - with basic,
inexpensive, everyday makeup
from one of the best places
ever created: Target.  Often people
recommend that I switch makeup
brands because they, "hide things
like that better".  I don't feel the
need to hide who I am under expensive
brands of makeup that smoother my
skin.  I don't  feel the need to hide who I am
to make others more comfortable.  My
birthmark gives me a unique opportunity
to help educate others.  Why not use it?

About every 2-3 months I also have laser treatments on my birthmark. I’ve had close to 42 treatments throughout my lifetime. As a child I was allowed to sleep through them, but now I’m awake while the doctors “beam me up”.  (You can see some videos that have been taken at previous treatments if you click here.)

The laser’s job is basically to go in through my skin and to burst the excess blood vessels. For two week to a month my face is a darker color than usual. To give you an idea of the discoloration, the picture at the beginning of this blog that went viral was taken just 20 minutes after approximately 260 individual laser pulses and does not represent how I look on a normal basis.

Without the treatments, my birthmark is at risk of getting darker with age. Without the treatments, the blood vessels can grow, causing my skin to harden, become a pebble-stone-like texture, and bleed at random whenever it wants. After every treatment my birthmark is lightened, which I guess is a perk, but also not the reason I do them. The main reason I have the painful treatments is so I can be proactive in preventing future medical complications. Once the damage is done, there’s no undoing it…and I want to avoid that possible route if I can. (For those wondering, yes, these treatments hurt. The more pulses they do the more it hurts. Praise the Lord for the numbing cream I wear beforehand to help dull the painful shock of the laser!)

No matter how many treatments I have and even if my birthmark becomes undetectable to the naked eye, I will always have my birthmark.  My cheek will always look swollen and my features asymmetrical.  I will always have glaucoma in my left eye.  The extra blood vessels will still go deep into my brain, and I will still have to have touch-up treatments when/if it darkens as I age.

To add to my story...This week, my face went viral on Facebook.

My face going viral on Facebook was never a goal of mine, nor was it anything on my bucket list. This wasn't something I planned or decided to do, it was something that was decided without me - completely without my knowledge or consent.

To sum it up: A group on Facebook with nearly 2 million followers has been using a photo of mine without my knowledge or consent - a photo that I took (just a selfie!) barely 20 minutes after a painful laser treatment on my facial birthmark. In addition to using my photo, they added text that says, "1 Like = Beautiful"...as well as their personal logo. My name and permission were not included in this process, nor was my story, a link to my blog or website.

Since the original post, my photo has received over 1,800 comments, nearly 400 shares, and almost 25,000 likes.

No, I'm not kidding.

I didn't know about this until Monday afternoon, after arriving home from my math class. A friend sent me the link saying they saw my face in someone else's newsfeed and the photo already had over 14,000 likes within the first 8 hours of it being posted.

Boy, have I been in shock! All week I've been going through many emotions. I've been going back and forth between denial, anger, frustration, to "this can become something positive!"...just to name a few of my emotions and thoughts.

It angers me to know that someone took my situation for their personal gain. It angers me that they took a specific photo...a photo that shows how I look only 2 weeks out of every 2-3 months...without sharing the background and ongoing story with it. It angers me that they never even asked for my permission.

And overall?? The whole situation has hurt. It has made me feel icky all week. (I work with 4-year-olds...Icky is the best word I can think of right now.)

Those who know me know that I am 100% open about my facial difference. They know I blog about my story on a regular basis...the cause of my birthmark, what can happen if I don't have laser treatments, the struggles (emotionally, physically, and mentally), the stories in regards to specific situations/interactions I have with people, and about my treatments, etc.

This is how I look without makeup.  I am
constantly going out without applying
foundation and powder to my skin.  I've
always had the mindset of, "while makeup
is a nice luxury, I always want to be
comfortable in my own, natural, skin.  I
never want to feel as though I have to
wear makeup to feel beautiful."  Makeup can
be fun, but a little foundation on my cheeks can't be,
and isn't, the foundation of my beauty.

I don't mind my story getting out there, as that's actually a part of my life's goal...But what I don't want?? I don't want my photo to go viral without the story being told. I want people to know my story - but not with the purpose of gaining sympathy. I want my story to be known in attempts of educating other people, and in hopes of motivating a cultural change in how "different" people are treated.

I've taken my story and blogged about it openly. Trying to take some recent negative situations and create something positive out of them, I do sensitivity trainings in hospitals.  I also talk to different classrooms at a local elementary school in hopes of teaching children how to be curious in a kind way and to allow them to ask their questions they may have.  (You can read more in detail about my hospital situations here and more in detail about speaking to the children at schools here.)  One day I hope to do a TED Talk as well as be a speaker for Women of Faith. I even have a few book ideas based around my difference and I’m hoping a publishing company will invest an interest one day in the future. (I've always been a big dreamer!)

But this whole thing of my face going viral on FB without consent??...It makes me feel awful on so many levels.

A part of me feels as though, while some of the "likes" are probably genuine in their thoughts of my beauty. But a part of me also feels as though they're 25,000 sympathy likes...and I've never been one who needs pity.

I don't need 25,000 strangers to validate who I am, or my beauty. I don't need help from the Internet and strangers behind their screens to tell me that I'm beautiful. Just because I have a facial difference doesn't automatically mean that I lack confidence, or think that I'm "ugly". In fact, while I've had my up-and-down days, that's never been a big struggle of mine. If I don't need to be validated by strangers, then why does the world feel that it needs to do that instead??

I've always known I'm slightly physically different, but until Monday, I never realized I was different enough to inspire such a viral meme.

Many friends of mine have recommended that I shouldn't read the 1,800+ comments that have been left in reaction to my photo. However, while I appreciate the advice, strangers comment on my birthmark all the time. It's a daily thing to have a stranger approach me in a store, or to stare at me across the room of a restaurant. What's the difference between listening to constant remarks, verses reading them?? That being said - I spent over an hour going through every comment and every share that was posted.

Going into it, I knew I had to read them with a dose of humor…and I’ve had a LOT of laughs while reading some of the responses. The majority of the comments have surprisingly been positive while others caused laughter as I knew I couldn't take them too seriously.

The names of those who left the comments aren't important.  Some of these comments are ones I've heard before, while many are ones that are new.  They've ranged from people telling me that they wished they were purple as well and there was one who wrote a post asking God to remove the "evil" from my face...followed by an "lol" (which this one is ironic, as I've never prayed for God to remove my birthmark).  Some stated that they are glad that we don't get into heaven by looks alone, and someone even posted that they wonder how old I am as the photo has been on there for years...even though I only took the photo within the last year or two and the shared date clearly marks this last Monday.  They've also said that my birthmark will fade with age (it won't), that a doctor can help me, and people have given makeup advice.  But most have said I'm beautiful, they're jealous of my unique color scheme, and that it's the inside that counts.  (Although, I have to add - it's interesting as to how many people have said, "God doesn't create junk"...Am wondering where that 'trendy' one even originated from, and why.)

I'm more than these "likes", "shares", and comments.  My worth, story, beauty, and value are so much deeper than what happens in the digital world - and I firmly believe that for everyone in the world.  The amounts of "likes" we have on Facebook or the amount of followers we have on Twitter do not define us.  We're all different in our own ways - whether our differences are visible or not.  But more than that?  We're all beautiful and special in our own ways.  We are more than the pixels that people see on their screens, and we can't allow others to make us believe otherwise.  We are all fantastic and brilliantly created just the way we are meant to be!!

I hope to have chances to be heard as I try to raise my own voice, but also represent the voices of many others who endure similar, unnecessary, experiences...people who may not have the confidence or ability to speak up. Some of my experiences are painful and they often sting - just like this week’s. However, even the most ugly and hurtful situations can develop into the most beautiful and unique story.

My response

Often I feel as though God is telling me, “I can take these ugly experiences and help them become beautiful if you allow me to use you. You have so much potential as I have much bigger plans for your life than what you could ever even imagine. There is more beauty in your life than you’ll ever know.” (Like my favorite verse, Jeremiah 29:11.)

Sure, having a birthmark that covers half my face can be a challenge. I have my good days, and I have days where I sometimes struggle…whether it is with strangers or with personal, internal, battles. Either way – I feel it’s an extraordinary opportunity to reach out to others in hopes of educating them, possibly making a small difference in the world…and I think that, alone, is a beautiful thing. Why not embrace it?

But hey...The positive part of this whole crazy experience?  My dating pool has probably grown from a small fishbowl to an ocean full of fish.

The Travelin' and Facebook Viral Chick,

Crystal


PS: For those interested, this is the original entry where in which photo came from.  And if you'd like to hear about my mother's journey of having a child with a physical difference, check out her brilliantly written entry, The Stain.


******UPDATE: Since posting this blog 2 weeks ago, I've come to learn that my image has been shared in at least 5 different Facebook times, going viral at least 16 times - that I know of. One group has 30 MILLION followers.  In that specific group, my photo has over 256,000 "likes", 1,000 shares, and over 13,000 comments.  This has not been a one time thing...And it inspires me even more to get my story out there.*********

Breaking Down the Box

I have a cool story to share from my week working at the elementary school.

A few days ago, I was out at recess monitoring some kids from the 3rd and 4th grade classes.  Overall, the children were mostly behaving - and that was enjoyable for me!  As I was scanning the playground, a young, worried looking boy ran up to me and said, "Ms. Crystal, my friend is making fun of you!"  I asked him, "Why is that?"  He replied, "He's making fun of you because of your birthmark!"  

Woah!!...What??  How much courage did it take for that young boy to tell me that his own friend was making fun of me?  Again - this is a boy in the 3rd or 4th grade!  I can't even begin to explain how impressed I was by his courage and maturity.

Not really sure how to handle the situation - especially since I didn't hear his friend making fun of me myself - I just asked the boy the name of his friend, their room number, and teacher's name.

Thankfully, it was a teacher that I have known for a few years now and have seen on and off during my campus visits before being hired as an NTA (noontime assistant).  It made it easier for me to talk comfortably with her about the issue, since I didn't know how that kind of situation should be handled.  

When I spoke with her, I told her about the boy who talked to me at recess.  She apparently was already made aware of the situation by some of her other students.  But, I told her, "I don't really know how to handle this, but as the boy's teacher, I wanted you to be aware that it was said.  I'm not upset - I didn't even hear what was said...And I know that kids do this kind of thing.  Kids will be kids!  But, if you ever want me to come to your classroom to share about it and to let them ask any questions they may have - just let me know!  I'd be happy to do so."  She made sure to let me know that she would talk with the child and make sure it was handled on her end.

Usually at recess, kids are asking me questions almost everyday.  Because of the many questions I receive, knowing I'm going to have another laser treatment in November (which  really encourages more questions), and now knowing that there was an issue of a child making fun of me, I sent the principal of the school (who is actually my former 4th grade teacher) a message.

I basically said the same to her as I told the teacher just moments earlier, but in a little more detail, "Hey! I meant to talk to you today but you seemed busy and I had to run to class. However, I was made aware today by one of the students that one of his friend was making fun of me because of my birthmark. No worries - I'm not upset or anything by it, I didn't even hear what was said. That's what kids do and I talked to his teacher about it.  But I just wanted to say - if any of the teachers want or need me to, I am always more then willing to go to their classrooms to teach the kids about it and to let them ask all their questions.  I'd rather help them understand it as curious children than to let them grow up to be rude adults. So, if the teachers ever want me to visit their classrooms for a few minutes - I can always come in early before my shift or on certain days I can visit after my shift is over. I'm more than willing, so they can just let me know."

She told me she would email all the teacher's about my offer.  About three hours later, she messaged me back saying she had 9 responses from teachers telling her that they would love for me to come share with their classes.  As of right now, I don't know the current count of all the teachers who want me to come in, but I was really amazed at at least 9 said yes.  It was unexpected for me - but it makes me happy and excited to have a chance to talk and share with the children.  I'm not really sure how much I am of "teacher material" - but to have the chance to try to impact children for just 10 or 20 minutes (or however long the teachers have me share and probably depending on how many questions I receive)...Wow.  What a cool opportunity!   

Today I had a few teachers tell me that they've emailed me to find out when I'm available to come and speak with their students.  (Teacher's I've never met even told me "hello" today by name...and I don't even wear a name badge, as I'm still waiting to get one.)  From the looks of it, I'll have the chance to share with children as young as 4-years-old to children in the 6th grade.  

In the last day, this whole thing had me wondering...Why doesn't the school system have a set up for people who are "different" from societies "normal"...Those who don't quite fit into that very stupid, small, and specific box that society wants people to fit into, come to speak to children?  You know...Those like me, with birthmarks on their faces...Or even those who are Deaf, blind, in wheel chairs, or amputees.  I can promise you that I'm not the only one who deal with issues from strangers...And I'm certainly not the only one willing to help teach others the beauty in being who I am, and to educate them about why I am the way I am.

In my personal experiences, I deal with a many rude adults...sometimes just once a week, but sometimes on a daily basis.  Between staring, stupid questions***, and rude comments...I have to deal with this a lot!

If we talk to people while they are still children, we can give them an easy way to teach them to be curious in a kind manner.  We can teach them appropriate ways to ask questions, and tell them it's not kind to stare.  More importantly, maybe we could tear down any possible future stereotypes that people have for those who physically look different, are in a wheel chair, are blind, or Deaf.

Here is an example of my own idea:  Yesterday evening, for a class assignment, I was able to interview a super sweet lady who happens to be Deaf.  One question that a friend and I asked her was, "What is one of your pet peeves of hearing people?"  Part of her reply was something along the lines of, "Hearing people often assume that because I'm Deaf, that means I am dumb and stupid.  I'm not."

Using this portion of the interview I had with the lady, let's say that later on, a child (let's call her Mary) hears their friend say something rude about a Deaf person, by calling them "dumb" or "stupid".  What if, instead of easily being able to laugh along at another person's expense because of influences of others who do the same, or accept the negative stereotypes and look down upon others for being Deaf, or someone else "different" in any other way...What if, when Mary hears their friends making fun of someone and can think, "Well, that's not true.  I remember when I was 8-years-old, and a Deaf man came into my classroom and shared with us about his life being Deaf...and he was far from being stupid!!  He's even a teacher at a university, is married, and has 3 or 4 children."

And then what if, from there, Mary can correct and influence her friend to think differently about others??

Maybe my idea is wrong.  Maybe it's right.  Either way, it's my two cents from a life time of 22-years of experiences.

Really, overall, I think people say and do things because they feel uncomfortable by situations and things that they aren't use to being around or seeing.  What if we made the children of today aware of other people and their really cool lives and unique experiences?   What if we taught them while they are young, how to act and treat others properly - regardless of they way they look, act, their race, if they can hear or not, if they can walk or use a wheel chair for assistance, or if they can see or can't see??  

Whether the person be blind, an amputee, in a wheel chair, Deaf, or has a birthmark on their face...Let's teach children that these aren't people to look down on and treat like they are any less than themselves, but these are incredibly beautiful people we can look up to for inspiration and as great role models.

Let's break down that box that the world has made for all of us to fit into.  We're all unique and special people, and we definitely weren't put on this earth to be put into a box - no matter of who we are, or even for who we aren't. 

The Travelin' Chick,
Crystal


***When I referred to an adult's questions being stupid, really, I don't think that any question is stupid.  People are curious and that's a natural part of being human, whether you're a child, teen, young adult, or older person.  I just feel as though the way adults usually handle seeing my birthmark for the first time handle it in a stupid manner.  They can ask about it, I'd love to help them learn about it!  But sadly, instead of maturely and kindly asking about my birthmark, they either stare, or usually ask about it in the weirdest or in a rude way...And that?  That's what I find to be stupid.  When kids ask me crazy questions?  Well, they're kids.  I've never viewed their ways of asking as stupid, as they are genuinely curious and really have the sweetest intentions as they learn how to properly ask questions.  They are, after all, children. ***

Birthmarks and Laser Treatments

Before going through a
treatment.  However, I'm wearing
make-up in this photo, so my
birthmark is lightened a good
 amount by make-up alone.

During spring break, I had a laser treatment on my birthmark.  Sparking conversations, many people have ask me questions such as, "What does the laser treatment do?  What does it feel like?  What is the purpose?"  Let me begin answering these questions with some quick background information.

First off, the type of birthmark that I have is called a "port wine stain".  There isn't really any rhyme or reason as to why I have it.  There's no genetic links, and it has nothing to do with my mother's pregnancy.  The only cause of my birthmark is, "just because it can exist, it does".  Due to an excess of blood vessels in my facial area, the blood vessels causes my skin tone to look a purplish type of color.  That being said, my birthmark goes much deeper than my skin.

If you were to look in my mouth, at my gums, in my ears, and in my nose, you can easily tell a color difference and where the birthmark starts and ends.  (Not that I go around looking up my nose or asking people, "Hey!!  You want to see the inside of my nose!??!?"...I am pretty sure that is socially unacceptable, and 100% socially awkward.  This is just an observation that doctors have made.)   The older I get, the darker it can get, and the texture of my skin is also at risk of changing (due to thickening of the blood vessels).  I also have to avoid getting too much sun without protection of sun screen, as that can damage the birthmark as well.  (Although, fun fact: I will add - when I get really, really cold...My mother and close friends can always tell.  My birthmark gets really dark, changing like a mood ring.  However, this change in color is only temporary.)

My birthmark goes all the way to my brain.  Occasionally I have to have MRIs done of my brain to make sure that none of the blood vessels have strayed into a more dangerous location.  When I was born, the doctor's had to watch me closely for my first 24 hours to make sure that the birthmark didn't cause any seizures.  If I didn't have any seizures in the first 24 hours, I would be okay.  I'm thankful that I didn't - as I am sure that would have greatly affected the way my life would play out.

Not only does my birthmark go brain deep, but it also affects my bone structure and density.  Even my teeth are affected by this.  It also adds to the lack of symmetry in my face - even more than the average person that doesn't have a birthmark.   The extra vessels make features expand a little more.  My lip is a perfect example of this, as the left upper lip is a little larger than the right upper lip.

Also, because it is more than skin deep, I also have had to deal with a disease called glaucoma in my left eye.  Glaucoma is an 80-year-old lady (or man) disease that I've had since I was about 8-years-old.  Due to all the blood pressure in my eye from all the blood vessels, I have to use eye drops twice a day, and see a doctor two times a year, just to make sure I don't go blind.  There is a surgery that can relieve glaucoma patients - but I don't know much about it.  Due to my type of glaucoma and the reasons that I have it, if the doctor makes one little wrong move - I would go instantly blind in my eye.  We've decided it's not worth the risk and have not asked for further information.

Pretty much, my birthmark is more than just something that alters the skin tone on my face.  Due to the color alteration, I sometimes have laser treatments. 

The numbing cream.  I have to
wear this for an hour before
the treatment.  It also has to
be applied on super thick.  It was
like icing a cake. ;-)

Okay...What is a laser treatment, and what does it do?  What is the goal?

The overall goal of the laser treatments is to lighten my birthmark. It's recommended that I have them every two months for the treatments to work at their best.  When I have the treatments, heat is sent from the laser, basically heating up the blood vessels.  When they get hot, they shrink - or burst.   When they shrink, the color lightens and other risk factors are lessened - such as the texture of my skin changing.

If I don't have the treatments, my birthmark will get darker as I age.  The blood vessels will get bigger, causing the darker color - and for my birthmark colored skin to become lumpy and a pebble-like texture.  By having the treatments, I am lessening my risks of it changing the color and texture - which is my main purpose of having the treatments.  (As really, I don't feel the need to hide.  Making it lighter is more than just about the color.)

After the treatment my face is extra purple for about a week - varying after each treatment.  It's swollen and painful, and I can't scratch or rub my face.  For the first few days I can't wear makeup either.  As long as the dark and purple color is around, I can feel heat radiating through my skin.  The lighter the purple gets, the less pain and heat that I feel.  Once the extra purple color disappears and my birthmark returns to normal color, my birthmark will lighten even more.

How do the treatments feel?  Afterwards it reminds me of a horrible sunburn.  Imagine your worst sunburn - and there you go.  That's the best way I can describe it.  During the treatment?  Well, the doctors like to describe it as a rubber band shooting the face.  I've decided that once they have a birthmark on their face and go through the treatments themselves, then they can describe how it feels.  The way I've decided I like to describe it is - it's like eating a spicy dish.

When you first start eating, your mouth is okay.  (In laser terms, the numbing cream I wear for an hour before does it's job to ease the pain to where the laser is barely felt.)  The more you eat, the more it stings - or feels like a rubber band. (Numbing cream starts wearing off the more laser pulses they send to my face.)  Eventually, it the food gets hot, and the spice intensifies.  (The pain gets even stronger - more than feeling like a rubber band.)  And occasionally, you hit a  jalapeño - or other spice/pepper - and your senses are sent through the roof with spice. (I would consider theses to be the really tender and sensitive areas on the face, such as the lip and nose.  I hardly let them treat these areas because of the intense pain.)

When I was a young child and toddler I use to have laser treatments on my face on a more regular basis.  To be honest, I'm not really sure how many I've had in my lifetime.  I would guess more than 25, more likely more than 30.

Since I was a child, they would let me sleep through the treatments by the use of anesthesia.  Once I hit the age of 11, that was advantage was taken away.  I was now "old enough" to stay awake during the treatment - only needing an hour of numbing cream before the procedure.

I went through one treatment awake at 11-years-old before I decided to stop.  Staying awake wasn't worth it to me.  The pain wasn't worth the outcome, as the laser machine they had wasn't making much of a difference.  The pain of the treatment was too overwhelming for me as well - so I decided to stop.  I decided that with the pain combined with an outcome that didn't show any differences - if I continued, I would be lettings stupid happen all over again.  My mom let me make my own decision about stopping, and I was glad.  I guess her theory is - it's my face, my body, the treatments aren't mandatory or needed, and I'm the one who has to go through it - not her.  I'm thankful for letting me choose for myself.

It wasn't until 2010 (at the age of 18) when I decided to try again and had a better outcome in comparison to when I was 11-years-old.  (Every three years, the hospital upgrades their machines as new medical advancements take place, so the machine was advanced at least 2-3 times since my last visit.)

My birthmark about an hour after
a treatment.  Please excuse the greasy
looking hair.  After the treatment,
Vaseline is applied to my face
to help prevent blistering and
other possible reactions from the treatment.
I promise I did shower that morning. :-)

In 2011, I planned to have another treatment and even blogged about it before I went, but we had to cancel at last minute.  Then, during spring break of 2012, I decided to attempt at the treatments again.  This time we were able to treat more than 80% of my birthmark, excluding my eye, nose, and lip area.  (Again, those areas are super sensitive for me.)  It took 200 laser pulses to get that much done.  It's been a few weeks since the treatment, and I've already noticed a difference.  I have another appointment for another treatment set up for May.

If you ever have questions about my birthmark or the treatments - please feel free to ask!  I am okay with people asking questions and they don't make me uncomfortable if they are asked in genuine curiousity and kindness.  In a way, I consider it a type of honor to be able to help others have a better understanding of this difference.  After all, you know my birthmark is there and I definitely know it's there...So why avoid talking about it if someone has a question or curiosity?   If you don't ask, it doesn't make my birthmark disappear.  It also doesn't make your questions go away either.  I would rather you know and have an understanding - so again, please ask if you want to know more!

Oh - and just because I am trying to lighten my birthmark - please don't think that I would change who I am today or that I am doing it due to any personal insecurities.  That's not the case.  Often I walk around with confidence in who I am, regardless of my birthmark. 

Just as any other female, I've had my ups and downs when it comes to my personal appearance.  However, that's normal for any female.  I just have a birthmark added to those ups and downs - but that's my normal.   Yes, I've wondered what it's like to have a 'normal' looking face.  But how many brunettes have wondered what it would be like to go blonde?  Rumor has it, it's just easier to dye your hair a different color than it is to change your skin tone.

Because of my birthmark, I've had to overcome a lot of different unique situations.  I've had to smile at the slightly rude person who has been awkwardly staring at me for five minutes.  I have also walked in stores or on a college campus, hearing comments and questions being spoken about me - but not to me.  (In a sense, sometimes it feels like I, as a person, am invisible in these situations - except for my half purple face...with people forgetting that I do have eyes that see them stare, I do have ears that hear them talk, and that I do have a brain that understands their reaction.)

I find it to be a joy to have the opportunities to share about physical differences that most people are not use to.  And sometimes, I even forget that I look different than most people…Until certain things are said or when people stare long enough.

My family and I have received comments such as, “How did you burn your baby??”  or  the most common question from adults - “What is wrong with your face?”  This is a prime example of how you shouldn't ask people questions if you're curious about something so personal.  This style doesn't come across as genuine, curious, or kind.  It comes across as mean, rude, nosey - and sometimes hurtful.  Nothing is wrong with my face.  Usually I try to be kind and ignore the tone of the question.  But, as I am human, and depending on my mood - sometimes I have to bite back sarcastic responses such as, "Nothing is wrong with my face.  What's wrong with your attitude and manners??"  (Sometimes I really need to work on my sarcastic internal and silent responses.)

People have even argued with me, telling it it’s not a birthmark, and that I have something like skin cancer or something contagious.  On the opposite end, I’ve had a woman in a clothing store tell me that she was jealous of me and that she wished she had a birthmark covering her face too.

While usually comments and stares don’t knock me down for long, I do have my weaker moments in liking my physical appearance - just like other people have.  Over the years I’ve had to overcome this obstacle when it arises, and even today it can sometimes be a daily practice.  For example: When an attractively handsome man stares at me.  Is he staring at me because he thinks I’m pretty, or is he victimizing me with his staring? 

Those feelings of insecurities don't usually stick around long, though.  As, again, there is a certain kind of joy that comes from being different from the world.  You see life differently and there are a lot of chances to teach others that’s okay to stand out a little.  It’s okay to look different!

I also know that my extra confidence comes from how I was raised by my parents.  When people would stare, like I mentioned above, my mom is the one who taught me to me to smile at them.  Maybe the staring person is having a bad day and needed a smile to lift their spirits.

My parents have also taught me to have a sense of humor.  Once I was asked by a man, “What’s wrong with your face?”  I told him, “It’s just a birthmark.”  He responded, “Oh – I thought you were beat by your husband or something!”  While my friends who were with me at the time got upset and offended over the comment, I just laughed.  For the first time in my life, I realized that I was old enough to be married if I wanted to be.  I didn’t feel offended or angry.  It was a moment of realization of the fact that I was old enough to marry!  I was an adult! 

Despite all the things I've had to over come in those areas, I also have unique stories that no one else has.  I've developed a sense of humor, learning to laugh at the awkward situations that I am faced with on a daily basis.  I have the blessing of having the ability to teach others that's okay not to fit in the mold that the world and society has given us.

It's a beautiful opportunity to be different.

The Travelin' Chick,

Crystal

PS: Sorry if any of what I've written today is a little repetitive of any posts in the past.  (Although, I've only posted about this topic twice, so hopefully there wasn't anything found to be repetitive!)

***Update September 19, 2013***
In May, the cause for port wine stains was found!  It's due to a rare gene mutation  - but is not the fault of the mother or genes of the father.  For more information, click here!